SMA News Today latest article: "SMA Europe inviting patients to talk of how treatment has changed life."
We're excited to announce that SMA News Today has featured our OdySMA real-life stories initiative, as part of their latest publication!
SMA Newsroom
Access to spinal muscular atrophy (SMA) treatment in Denmark: a success story of how persistence can win in the end.
Denmark has achieved a major milestone in SMA advocacy!
On 28 August 2024, after years of tireless efforts, the country secured access to SMA treatment for much of the community, including adults.
‘One Community. Shared Dreams’ Documentary Spotlight SMA Awareness Campaign
We are delighted to invite you to read the latest features from SMA News Today and Rare Revolution Magazine, showcasing our documentary that aims to raise awareness about the importance of research in Spinal Muscular Atrophy.
New partnership with EUPATI
We are thrilled to announce our collaboration with EUPATI, an organisation committed to educating and empowering patients and their advocates.