Denmark has achieved a major milestone in SMA advocacy!
On 28 August 2024, after years of tireless efforts, the country secured access to SMA treatment for much of the community, including adults.
We are delighted to invite you to read the latest features from SMA News Today and Rare Revolution Magazine, showcasing our documentary that aims to raise awareness about the importance of research in Spinal Muscular Atrophy.
We are thrilled to announce our collaboration with EUPATI, an organisation committed to educating and empowering patients and their advocates.
We are excited to announce our new partnerships with Rare Revolution Magazine and SMA News Today, two leading digital health media outlets dedicated to the rare disease and SMA communities. These collaborations are set to ensure global outreach by amplifying the voices of SMA patients and delivering patient-centered content that truly matters. Together, we are committed to raising awareness and providing essential resources for Spinal Muscular Atrophy.