AdvocacyMay 6, 2024
New publication: Spinal Muscular Atrophy. Digital Spotlight by Rare Revolution Magazine.
We are delighted to invite you to read the latest Digital Spotlight on Spinal Muscular Atrophy by Rare Revolution Magazine.
SMA Newsroom
AdvocacyFeb 29, 2024
Today we launch "Care for adults living with SMA in Europe: a benchmarking report!
Today, on Rare Disease Day 2024, we are very excited to launch: "Care for adults living with SMA in Europe: a benchmarking report."
AdvocacyDec 13, 2023
New article: "I am Unique"
We are delighted to share with all of you the latest article about our 2023 Awareness Campaign: "I am Unique".
AdvocacyApr 16, 2023
Rare Revolution Magazine: interview with Nicole Gusset.
Today we are very happy to share with you the interview with our CEO, Nicole Gusset, published by Rare Revolution Magazine.
Nicole shares her vision of SMA Europe and speaks about different initiatives led by our organisation:
"(...) Initially, we were all united in the same goal—all fighting for the same unmet need—lack of treatments. Now we have medicines, but these are not universally available across Europe (or indeed globally). We need to be careful in our work that we stay united. (...)"