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We're excited to announce that SMA News Today has featured our OdySMA real-life stories initiative, as part of their latest publication!

SMA News Today latest article: "SMA Europe inviting patients to talk of how treatment has changed life."

Last Wednesday, 16 of October, Alice Larotonda and Laura Gumbert, on behalf of SMA Europe, presented OdySMA Real-Life Stories.&nbsp;

OdySMA Real-Life Stories' presentation at Brown University

Real-life Stories on OdySMA

<span style="color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff;">While stabilising treatment for SMA is available, European-wide access is not.&nbsp;<br style="background-repeat: no-repeat; box-sizing: border-box; padding: 0px; margin: 0px; --tw-border-opacity: 1; --tw-shadow: 0 0 #0000; --tw-ring-inset: var(--tw-empty, ); --tw-ring-offset-width: 0px; --tw-ring-offset-color: #fff; --tw-ring-color: rgba(59, 130, 246, .5); --tw-ring-offset-shadow: 0 0 #0000; --tw-ring-shadow: 0 0 #0000; color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff; border: 0px solid rgba(237,242,247,var(--tw-border-opacity));" /><br style="background-repeat: no-repeat; box-sizing: border-box; padding: 0px; margin: 0px; --tw-border-opacity: 1; --tw-shadow: 0 0 #0000; --tw-ring-inset: var(--tw-empty, ); --tw-ring-offset-width: 0px; --tw-ring-offset-color: #fff; --tw-ring-color: rgba(59, 130, 246, .5); --tw-ring-offset-shadow: 0 0 #0000; --tw-ring-shadow: 0 0 #0000; color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff; border: 0px solid rgba(237,242,247,var(--tw-border-opacity));" /><span style="color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff;">Meet Jana, Julia and Nataliia to understand how access to treatment and care, can impact the lives of people living with SMA!

New Real-life Stories on OdySMA! 

You can read it here (P38)

We are delighted to see that the OdySMA abstract submitted after the European Conference on Rare Diseases (ECRD) 2022, was recently published in the Orphanet Journal of Rare Diseases on Friday, 2nd June.

SMA Newsroom

SMA News Today latest article: "SMA Europe inviting patients to talk of how treatment has changed life."

OdySMA Real-Life Stories' presentation at Brown University

New Real-life Stories on OdySMA!

Publication of OdySMA abstract in the Orphanet Journal of Rare Diseases

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