SMA Newsroom

Real-life Stories on OdySMA

<span style="color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff;">While stabilising treatment for SMA is available, European-wide access is not.&nbsp;<br style="background-repeat: no-repeat; box-sizing: border-box; padding: 0px; margin: 0px; --tw-border-opacity: 1; --tw-shadow: 0 0 #0000; --tw-ring-inset: var(--tw-empty, ); --tw-ring-offset-width: 0px; --tw-ring-offset-color: #fff; --tw-ring-color: rgba(59, 130, 246, .5); --tw-ring-offset-shadow: 0 0 #0000; --tw-ring-shadow: 0 0 #0000; color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff; border: 0px solid rgba(237,242,247,var(--tw-border-opacity));" /><br style="background-repeat: no-repeat; box-sizing: border-box; padding: 0px; margin: 0px; --tw-border-opacity: 1; --tw-shadow: 0 0 #0000; --tw-ring-inset: var(--tw-empty, ); --tw-ring-offset-width: 0px; --tw-ring-offset-color: #fff; --tw-ring-color: rgba(59, 130, 246, .5); --tw-ring-offset-shadow: 0 0 #0000; --tw-ring-shadow: 0 0 #0000; color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff; border: 0px solid rgba(237,242,247,var(--tw-border-opacity));" /><span style="color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff;">Meet Jana, Julia and Nataliia to understand how access to treatment and care, can impact the lives of people living with SMA!

New Real-life Stories on OdySMA! 

Full publication

We are delighted to invite you to read the latest Digital Spotlight on Spinal Muscular Atrophy by Rare Revolution Magazine.&nbsp;

New publication: Spinal Muscular Atrophy. Digital Spotlight by Rare Revolution Magazine.

<span style="color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff;">Today, on Rare Disease Day 2024, we are very excited to launch: "Care for adults living with SMA in Europe: a benchmarking report."<br style="background-repeat: no-repeat; box-sizing: border-box; padding: 0px; margin: 0px; --tw-border-opacity: 1; --tw-shadow: 0 0 #0000; --tw-ring-inset: var(--tw-empty, ); --tw-ring-offset-width: 0px; --tw-ring-offset-color: #fff; --tw-ring-color: rgba(59, 130, 246, .5); --tw-ring-offset-shadow: 0 0 #0000; --tw-ring-shadow: 0 0 #0000; color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff; border: 0px solid rgba(237,242,247,var(--tw-border-opacity));" /><br style="background-repeat: no-repeat; box-sizing: border-box; padding: 0px; margin: 0px; --tw-border-opacity: 1; --tw-shadow: 0 0 #0000; --tw-ring-inset: var(--tw-empty, ); --tw-ring-offset-width: 0px; --tw-ring-offset-color: #fff; --tw-ring-color: rgba(59, 130, 246, .5); --tw-ring-offset-shadow: 0 0 #0000; --tw-ring-shadow: 0 0 #0000; color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff; border: 0px solid rgba(237,242,247,var(--tw-border-opacity));" />

Today we launch "Care for adults living with SMA in Europe: a benchmarking report!

Full article

"I am Unique": Rarity Life Magazine article on the 2023 Awareness Campaign

We are delighted to share with all of you the latest article about our 2023 Awareness Campaign: "I am Unique".

SMA Newsroom

New Real-life Stories on OdySMA!

New publication: Spinal Muscular Atrophy. Digital Spotlight by Rare Revolution Magazine.

Today we launch "Care for adults living with SMA in Europe: a benchmarking report!

New article: "I am Unique"

Categories