SMA Newsroom

OtherNewslettersAdvocacyRare DiseasesMembersSep 3, 2024

New partnership with EUPATI

We are thrilled to announce our collaboration with EUPATI, an organisation committed to educating and empowering patients and their advocates.

New partnership with Rare Revolution Magazine and SMA News Today

We are excited to announce our new partnerships with Rare Revolution Magazine and SMA News Today, two leading digital health media outlets dedicated to the rare disease and SMA communities. These collaborations are set to ensure global outreach by amplifying the voices of SMA patients and delivering patient-centered content that truly matters. Together, we are committed to raising awareness and providing essential resources for Spinal Muscular Atrophy.

MembersJun 24, 2024

SMA Europe votes for the New Board!

We are delighted to announce that on the 14 of June, during our General Assembly meeting in Munich, SMA Europe delegates chose members of our new Board.