Living with SMA

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One Community. Shared Dreams.

#WeAreOne: watch our campaign and support research in SMA!

Creating a better world for all those living with SMA

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Ensuring no one is left behind

Get involved in OdySMA, a quest to access

Elevating the voice of people living with SMA

Check our European Patient Expectation Surveys

Living with SMA

Learn more

One Community. Shared Dreams.

#WeAreOne: watch our campaign and support research in SMA!

Research

Promoting and generating patient-relevant evidence to support evidence-based patient advocacy

Therapy

Ensuring the needs and wants of patients across Europe are taken into account during the entire drug development process

Healthcare

Generating evidence on the access situation to diagnosis, treatment and care in Europe

All together. One goal.

 

Our members are national patient organisations led by people living with SMA and their families. Together, we are determined to make a positive difference to the lives of all those who are also living with SMA.

 

29

Patient Organisations

27

European Countries

Call for Research Proposals

SMA Europe runs a call for research proposals aimed at finding therapies for SMA or at elucidating the basic pathophysiological processes of the disease.

Call for proposalsPreviously funded projects

SMA Europe initiatives

Working to bring effective treatments and optimal care to everyone living with SMA

OdySMA

Revealing the 'quest to access' of people living with SMA

NBS Alliance

Making Newborn Screening for SMA a reality in all European countries

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