Nutrition in SMA: workshop report
Full report
Nutrition in SMA
We are excited to share with you the meeting report from the “Nutrition in SMA” workshop held in November 2022.
Both the meeting and the report are the result of the ongoing collaboration between SMA Europe and Roche.
“Nutrition in SMA” workshop allowed patients, caregivers and expert panellists to define current unmet needs and the next steps to address these gaps. The following report comprises topics and discussions on feeding support, weight management and measurement of swallowing and feeding. During the event we also had the opportunity to share the results of the 2021 EUPESMA survey, related to nutrition in SMA.
At SMA Europe, we work hard while engaging with all stakeholders to elevate the voice of our SMA community and identify optimal treatment and care for all SMA patients in Europe. We strongly believe that in this way we can have a real impact to ensure the creation of a better world for all those living with SMA.
All together. One goal.