SMA Europe collaborates with the "Patient involvement in the development, regulation and safe use of medicines" report.
This CIOMS report describes the importance of a patient's perspective during all phases of medicine's life. The report bears in mind both the present context as well as the future, desired path that shall be followed.
CIOMS is an international, non-governmental, non-profit organization with the mission to advance public health through guidance on health research and policy including ethics, medical product development, and pharmacovigilance. In SMA Europe we are grateful for the opportunity of taking part in the report. We believe that initiatives like this one, bring closer the patient's perspective about the whole life of medicines and, ultimately, help us to fulfil our vision of creating a better world for all those living with SMA.